Friday, June 30, 2017

Dinner out!

Head is cold

Happy Birthday Jonah!

Thursday, June 29, 2017

Wil was very entertained by Kristen today for hours at the cancer center 😂

Needed blood today UGH. Probably should not have cookies as he is pre-diabetic but doc said ok.

Much thanks to Sara and Kris for coming to help out this week!

Wednesday, June 28, 2017

His port did not want to cooperate today. But he was awake and happy-ish!

Off to register for classes! College! Oh my! 😍

Tuesday, June 27, 2017

He never woke up the 2 hours we were at the clinic. Had more drug problems. They ordered the chemo pills to the wrong place yesterday so he never received them. Then his pump shut off and then he ran out of saline .... arghhhh. Finally they got his labs and gave him his liquid chemo. They brought over his new chemo pills ( no delivery charge... well thanks :/ Then we got home and his medicine was in a giant box on the porch that says REFRIGERATE. Too heavy to carry. Got the new bag installed but the lock won't turn so they are going to send out a third pump. The home health care nurse came to the house and brought an 8 hour battery pack and the new pump is coming later. He is hooked up to meds and I am exhausted!
And here we are at the clinic and he is still asleep... oh well the chemo on Friday kicked his butt.
And I guess I did NOT keep my fingers crossed because the night was horrible! The pump went off almost every 2 hours and I had to run to the store at 5 am to get more batteries! This is me trying to wake him up for his doctor appt.

Happy THIRTY (yes 3-0) years to us! How did that happen?

Monday, June 26, 2017

My nursing assistant 😍 first bag changed no problems! Keeping fingers crossed!

This girl rocks! 2,000 pieces DONE! Wow!

Wil taking Kate's temperature

Got trained on how to change the "back pack"

Back from surgery and two additional bags of chemo going in

Headed to surgery

My nurse for the morning

Traffic made us 2 minutes late to hospital.

He actually caught a ball but gave it to a little boy.

Night at the ballpark, much needed.

Sunday, June 25, 2017

Man-child resting before our Cardinals game

This stupid disease sucks

A little sight seeing from the car windows

Migraine finally broke, lunch on the hill.

Wil's new exercise floor bike to help with calf muscles and supporting his team on game day!